As a parent, one of the most challenging parts of walking your children through medical difficulty is the decisions that need to be made. We’ve been in the thick of it for a few months regarding a decision we had to face with Audra’s eosinophilic esophagitis (EoE) treatment and have been asking ourselves these questions: How do you make a choice between multiple options that will have an unknown impact on your child? How do you make wise decisions without doubting or second-guessing yourself down the road? How do you deal with the sometimes crippling fear of not making the “right” decision?
Read MoreIt is an honor to introduce you all to some new heroes of ours, the Osborn family. My brother-in-law actually introduced us to them, and after reading their blog, I am so humbled and filled with admiration for this family. Ashlee and Kenny are walking their son, Charlie, through Hyper-IgM Syndrome, an extremely rare immunodeficiency disorder that makes it difficult for his body to fight off certain types of infections and viruses.
Read MoreAround the 7 month mark in our journey to discover answers on why our daughter was still sick, we met with a truly amazing GI doctor. He was able to diagnose Audra’s condition: eosinophilic esophagitis (EoE), a relatively new disease that attacks the esophagus and is often aggravated by food allergies and intolerances. We were immediately plunged into a new world of elimination diets, endoscopies, new medications, allergy testing, and lots and lots of research on our part.
Read MoreThe beginning days of parenting our daughter Audra were filled with all the delight of most first time parents. Audra’s first week home, we would tiptoe into her nursery and just stare at her tiny form. We were in complete awe of our little miracle and so full of thanks and amazement as we watched her grow and change. The way she saw the world and took in every moment showed us glimpses of her personality.
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