Posts tagged Dermatology
Neurocutaneous Melanosis and Giant Congenital Melanocytic Nevus: Addie's Story of Hope

The tone in operating room quickly switched from light and airy to hushed after the birth of the Hott’s second daughter. The Hotts were soon told that their daughter had a large birthmark, a Giant Congenital Melanocytic Nevus that occurs approximately once in every 500,000 births. When Rob was allowed to see his daughter, he was surprised to see that the birthmark covered most of their daughter's back and wrapped to the front of her body around her neck and arms. In her first hours of life, Addie was also diagnosed with a rare neurological condition: Neurocutaneous Melanosis. When asked what hope looks like for their family, the Hotts share a perspective that is deeply rooted in personal faith, as well as an awareness of the realities their daughter will face moving forward.

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